健康医疗数据共享意愿影响因素研究*
Survey on influencing factors of willingness to share health care data
目的 了解居民对健康医疗数据共享意愿及其影响因素,为激发居民数据共享积极性提供依据。方法 采用随机整群抽样和便利抽样方法,通过在线填写问卷调查不同地区的居民,运用R语言进行卡方检验、Logistics回归分析影响居民共享意愿的因素。结果 共回收829份有效问卷,签署同意书(OR=0.393, CI0.16,0.859)、数据脱敏(OR=0.681, CI0.471,1.006)、认为有利于科学研究 (OR=0.554, CI0.402,0.768)、认为有利于健康管理(OR=0.564, CI0.433,0.742)是共享意愿的影响因素。建议 国家应出台健康医疗大数据法细化数据保护制度;发展隐私安全计算技术,保障数据安全;做好宣传普及工作,建立数据共享信心。
Objective To understand residents willingness to share health care data and its influencing factors, so as to provide evidence for stimulating residents enthusiasm for data sharing. Methods Random cluster sampling and convenience sampling were adopted to investigate the residents in different areas by filling out questionnaires online. Chi-square test and Logistics regression were used to analyze the factors affecting residents willingness to share. Results A total of 829 valid questionnaires were collected. Signing consent (OR = 0.393, CI 0.16,0.859), data desensitization (OR = 0.681, CI 0.471,1.006), “considering that it is beneficial to scientific research” (OR=0.554, CI 0.402,0.768), “considering that it is beneficial to health management” (OR=0.564, CI 0.433,0.742) are the influencing factors of sharing intention. Suggestion The state should promulgate the laws on big data in health care to refine the data protection; develop privacy security computing technology to ensure data security; do a good job in publicity and popularization work, and build confidence in data sharing.
党佳荷、马钰潇、郭恺琳、皮洁、刘叶、樊敏
医学研究方法医药卫生理论
健康医疗大数据共享意愿影响因素
Big data in health caresharing willingnessinfluencing factors
党佳荷,马钰潇,郭恺琳,皮洁,刘叶,樊敏.健康医疗数据共享意愿影响因素研究*[EB/OL].(2021-10-07)[2025-08-02].https://www.biomedrxiv.org.cn/article/doi/bmr.202110.00032.点此复制
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