孤独症谱系障碍儿童父母支持服务清单的构建：基于时机理论

Background  Parents of children with autism have multi-dimensional support service needs such as informationemotionand skillsand the support service needs are constantly changing. Objective  To development a systematic supportive service checklist for parents of children with autism based on Timing It Right theory. Methods  From January 2024 to February 2025based on the summarized key points of support services from evidence synthesis and Timing It Right theorycombined with the qualitative research results of parental support service needs and the survey results of parents of children with autismthe first draft of the checklist was preliminarily formulated. The Delphi method was used to select 23 experts nationwide in China for two rounds of expert consultationand the final draft of the list was formed after revising the content of the first draft according to the experts' opinions. Results  In the two rounds of expert consultation23 and 20 questionnaires were distributedand 20 and 20 valid questionnaires were recovered. The response rates in two rounds of expert consultation were 86.96% and 100.00% respectivelyand the expert authority coefficients were 0.874 and 0.878 respectively. The average score of the five first-level items in the second round of expert consultation was 4.74-5.00 pointsthe average score of the 20 second-level items was 4.42-5.00 pointsand the average score of the 63 third-level items was 4.50-5.00 points. The final version of checklist of supportive service checklist for parents of children with autism included five first-level items including event/diagnosisstabilizationpreparationimplementation and adaptation phases20 second-level items and 63 third-level items. Conclusion  This study formed a supportive service checklist for parents of children with autism. The process of forming the checklist is scientific and reliablewhich can provide a reference for clinical medical staff to carry out support services for parents of children with autism in different stages and dimensionsbut the practical application effect still needs to be further verified.