Guiding caregivers through disclosure: a qualitative investigation into caregivers’ responses to a disclosure intervention for HIV-infected children in Soweto, South Africa
Guiding caregivers through disclosure: a qualitative investigation into caregivers’ responses to a disclosure intervention for HIV-infected children in Soweto, South Africa
Abstract Awareness of Human Immunodeficiency Virus (HIV) status improves health outcomes in HIV infected children, yet disclosure is often delayed by hesitant caregivers. This qualitative investigation explored how 30 caregivers responded to a HIV Disclosure study conducted between 2017 and 2020 at Chris Hani Baragwanath Academic Hospital, Soweto, South Africa. Caregivers were assisted in disclosing to their children, aged 7-13 years; followed by a sub-sample of caregivers interviewed to elaborate on findings.1) Barriers to disclosure included caregivers being ill-equipped, fear of negative consequences and children considered lacking emotional or cognitive readiness. 2) Deflecting diagnosis and the need for medication motivated caregivers to disclosure. 3) Apprehension was evident during disclosure, however, overall disclosure was a positive experience with the support of the healthcare providers. These results highlight the significant role healthcare providers play in supporting caregivers through the disclosure process and how, in turn, this has a positive impact on the community as a whole.
Violari Avy、Ramsammy Candice、Leshabane Given、Otwombe Kennedy、Buckley Janice、Milovanovic Minja、Joyce Celeste、Galvin Lisa、Liberty Afaaf
Perinantal Human Immunodeficiency Virus Research Unit, Faculty of Health Sciences, University of the WitwatersrandPerinantal Human Immunodeficiency Virus Research Unit, Faculty of Health Sciences, University of the WitwatersrandPerinantal Human Immunodeficiency Virus Research Unit, Faculty of Health Sciences, University of the WitwatersrandPerinantal Human Immunodeficiency Virus Research Unit, Faculty of Health Sciences, University of the Witwatersrand||School of Public Health, Faculty of Health Sciences, University of the WitwatersrandPerinantal Human Immunodeficiency Virus Research Unit, Faculty of Health Sciences, University of the Witwatersrand||Department of Psychiatry, University of the WitwatersrandPerinantal Human Immunodeficiency Virus Research Unit, Faculty of Health Sciences, University of the Witwatersrand||African Potential Management ConsultancyPerinantal Human Immunodeficiency Virus Research Unit, Faculty of Health Sciences, University of the WitwatersrandPerinantal Human Immunodeficiency Virus Research Unit, Faculty of Health Sciences, University of the Witwatersrand||Department of Psychiatry, University of the WitwatersrandPerinantal Human Immunodeficiency Virus Research Unit, Faculty of Health Sciences, University of the Witwatersrand
医学研究方法儿科学医药卫生理论
HIVdisclosurestigmachildrencaregivers
Violari Avy,Ramsammy Candice,Leshabane Given,Otwombe Kennedy,Buckley Janice,Milovanovic Minja,Joyce Celeste,Galvin Lisa,Liberty Afaaf.Guiding caregivers through disclosure: a qualitative investigation into caregivers’ responses to a disclosure intervention for HIV-infected children in Soweto, South Africa[EB/OL].(2025-03-28)[2025-04-26].https://www.medrxiv.org/content/10.1101/2021.10.14.21264620.点此复制
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